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Support for Family Caregiving

Most older adults who need assistance with their daily lives receive that help from family members. Most frequently it is the care receiver's spouse or daughter who provides the needed care. Often that help is provided at great financial and emotional cost to the caregiver.

Since 1992, Pennsylvania has operated a caregiver support program that can provide much needed help to caregiving families. The Pennsylvania Family Caregiver Support Program serves more than 3,500 families at any given time. More than 6,000 families benefit from the program over the course of any given year.

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Under the program, the primary caregiver is allowed to decide what support is needed from the program and other community resources. This could involve any combination of caregiving information and educational opportunities, respite services, supplementary care, consumable supplies, assistive devices and home modifications. the program rules require that the primary caregiver and the care receiver live in the same household.

The maximum financial benefit available under the program is $200 per month in reimbursement for the purchase of services and supplies and a "grant" of no more than $2,000 over the life of a case to help with the purchase of home modifications and expensive assistive devices. Families within 200% of the poverty level can receive full financial benefits. Families with incomes between 200% and 380% of the poverty level are eligible for reduced financial benefits based on a sliding scale. The majority of participating families are eligible for full benefits. For example, based on current guidelines, a household of five (a daughter, her spouse, two children, and a care receiving parent) could have an aggregate income of $38,500 before the financial benefit would be reduced at all, and they would still be eligible for half of the financial benefit with an income of up to $57,750.

Consumers typically utilize their monthly financial benefit for purchasing day care services, hands-on assistance at home, nutritional supplements, over the counter medications, incontinence supplies, and assistive devices. Families use their "capital assistance" benefit to help pay for items such as lift chairs, stair glides, portable ramps and other various assistive devices. They also use the grant to make modifications to their home to facilitate caregiving and safety, like adding a downstairs bathroom, building a ramp, or modifying an existing bathroom.

If you think you might qualify for help from the Family Caregiver Support Program, you should call your local Office of Aging. The number can usually be found in the Human services or Hotline sections of your telephone directory.

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